Josie is a 4 year old little girl who loves her family and her dog Wilma. The Penshurst loves to laugh, play, read stories, swing, swim and cuddle.
Josie also lives her life with a rare disease called FoxG1 which is a rare genetic mutation that affects her brain development and function. It means Josie is unable to walk or talk. She is tube fed, vision impaired, suffers from seizures, severe reflux, has increased susceptibility to illness, and with limited use of her hands, Josie struggles to communicate her most basic daily needs.
Canterbury has teamed up for a fourth year with the Steve Waugh Foundation who supports children and young adults affected by a rare disease by providing life changing support through a $20,000 grant to cover Josie’s physiotherapy costs for the next year, and a much needed swivel car seat.
Josie is one of up to 400,000 children, and up to 2 million Australians affected by a rare disease which impacts up to 1 in 10 people in our country.